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RELEASE: Rep. Albright Appointed to Rare Disease Advisory Council

Monday, March 02, 2020

REP. ALBRIGHT APPOINTED TO RARE DISEASE ADVISORY COUNCIL

ST. PAUL — State Representative Tony Albright, R-Prior Lake, was appointed to the Minnesota Rare Disease Advisory Council prior to the 2020 legislative session.

The Minnesota Rare Disease Advisory Council works to improve the lives of MN Citizens living with rare diseases by creating efficient and collaborative partnerships between families, providers, researchers, and industry that address systematically identified needs in the rare disease community.

“I am honored to join the Rare Disease Advisory Council and work to shine a light on the scope of these diseases,” Rep. Albright said. “We don’t understand what the financial implication is to the state and families. We need to better understand what the issues are, is going to put us in a better position to help families dealing with these diseases.”

The Minnesota Rare Disease Advisory Council was established by the University of Minnesota at the direction of the 2019 legislature. 

Jakub Tolar, Dean of the Medical School and Vice President for Clinical Affairs, University of Minnesota, had this to say on Rep. Albight's appointment, "I have worked with Rep. Albright for the past six years, and I continue to be impressed with his commitment to making Minnesota a better place for all Minnesotans, not only his constituents. As a member of the council, he will bring the same thoughtful passion to the rare disease space as he has done with the University of Minnesota in other areas of healthcare research and innovation." 

Albright continued, "I look forward to undertaking this challenge and bringing back recommendations to the legislature on how to best move forward in combating rare diseases and the special problems they bring." 

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